I am a 54-year old Keratoconus (KC) sufferer living in beautiful Lexington, KY.
I have a lovely wife and two daughters. These three are the center of my life.
I own and operate a web marketing consultancy called BuzzMaven in downtown Lexington providing online marketing programs for business. My hobbies include mountain biking and metal detecting for old coins.
There were two less common things that were true for my case:
- My Keratoconus was diagnosed in my early 30s. Most of the time it’s found much earlier.
- My Keratoconus is in one eye only (unilateral) (so far.) This is a major blessing.
Here’s my timeline.
Santa Clara, CA
- 1994: Age 28. Vision in left eye began to worsen. Ophthalmologist did not check for KC.
- 1996: Continued vision decrease, referred to specialist.
- 1996: KC diagnosed via corneal topography, soft lens wear continued. Age 30.
- 1998: KC slow progression – soft lenses still working but vision decreasing.
- 2002: Difficulty increased with soft lenses. Headaches, lots of blinking trying to “clear up” my vision.
- 2003: Small, rigid Permeable lenses fitted for left eye – tolerance was poor. I think this lens scarred my cornea, and represents a dark moment in my KC history.
- 2003: Piggyback strategy deployed. Many hard lenses lost to small breezes and fast movements.
- 2003: Intense pain occasionally – “Needle” feeling. Determined to be corneal abrasions from Soft Lens.
- 2004: New soft KC lens from Lens Dynamics fitted. Excellent comfort. This lens has no vault – but a thicker region in center for optics.
- 2008: Soft KC lens became intolerable due to Corneal Contact (no vaulting.) Repeated painful abrasions, especially in morning.
- 2008: Nightime comfort decreased. Lens lubricants no longer prevented pain. Sleep disruption and intense morning pain.
- 2009: Fitted for semi-scleral RGP lens – took 5 tries to find one that worked. First few had 6 hour wear-time. Finally reached 11 hour wear time.
- 2009: Discomfort is continuous, scleral lenses were re-fitted. Nighttime and morning pain affecting my life.
- 2010: Ophthalmologist describes the severity of my scarring – tells me that intacs or implantable solutions were not going to work.
Lexington, KY / Cincinnati, OH / Northern KY
- Summer 2010: Met with three different corneal surgeons: two in Lexington, one in Cincinnati area. Most impressed by Dr. Holland.
- 2011: Explored corneal transplant option. Dr. Holland suggested DALK is possible.
- 2/3/2011: Started this site on the day of my final transplant consultation with Dr. Holland
- 2/4/2011: Decided to proceed with DALK transplant on March 9th, 2011.
- Go here to pickup the timeline.