I am a 46-year old Keratoconus (KC) sufferer living in beautiful Lexington, KY. I have a lovely wife and two teenage daughters. These three are the center of my life.
I own and operate a web marketing consultancy called BuzzMaven in downtown Lexington providing online marketing programs for business. My hobbies include mountain biking and metal detecting for old coins.
Broadly, I fall into this Keratoconus
- My Keratoconus was diagnosed in my early 30s. Most of the time it’s found much earlier.
- My Keratoconus is in one eye only (unilateral) (so far.) This is a major blessing.
Here’s my timeline.
Santa Clara, CA
- 1994: Age 28. Vision in left eye began to worsen. Ophthalmologist did not check for KC.
- 1996: Continued vision decrease, referred to specialist.
- 1996: KC diagnosed via corneal topography, soft lens wear continued. Age 30.
- 1998: KC slow progression – soft lenses still working but vision decreasing.
- 2002: Difficulty increased with soft lenses. Headaches, lots of blinking trying to “clear up” my vision.
- 2003: Small, rigid Permeable lenses fitted for left eye – tolerance was poor. I think this lens scarred my cornea, and represents a dark moment in my KC history.
- 2003: Piggyback strategy deployed. Many hard lenses lost to small breezes and fast movements.
- 2003: Intense pain occasionally – “Needle” feeling. Determined to be corneal abrasions from Soft Lens.
- 2004: New soft KC lens from Lens Dynamics fitted. Excellent comfort. This lens has no vault – but a thicker region in center for optics.
- 2008: Soft KC lens became intolerable due to Corneal Contact (no vaulting.) Repeated painful abrasions, especially in morning.
- 2008: Nightime comfort decreased. Lens lubricants no longer prevented pain. Sleep disruption and intense morning pain.
- 2009: Fitted for semi-scleral RGP lens – took 5 tries to find one that worked. First few had 6 hour wear-time. Finally reached 11 hour wear time.
- 2009: Discomfort is continuous, scleral lenses were re-fitted. Nighttime and morning pain affecting my life.
- 2010: Ophthalmologist describes the severity of my scarring – tells me that intacs or implantable solutions were not going to work.
Lexington, KY / Cincinnati, OH / Northern KY
- Summer 2010: Met with three different corneal surgeons: two in Lexington, one in Cincinnati area. Most impressed by Dr. Holland.
- 2011: Explored corneal transplant option. Dr. Holland suggested DALK is possible.
- 2/3/2011: Started this site on the day of my final transplant consultation with Dr. Holland
- 2/4/2011: Decided to proceed with DALK transplant on March 9th, 2011.
- Go here to pickup the timeline.