As I look down my Facebook events a moment ago, I see the following:
Not attending
Not attending
Not attending
Not attending
Almost imperceptively, Keratoconus has given me an impulsive “can’t go” reaction to everything that happens after 8PM. I know my eyes will be hurting and dry by then, and will want to stay home.
I even project this onto others… “You can’t possibly do that drive in a single day!” I’ll say. The reality is that I’ve simply forgotten that it is possible to remain active for longer than 10 hours.
This is the most upsetting thing about Keratoconus for me, it has made me a lot less out-going and I rarely have nights out with my friends because I know my lenses will cause me trouble and result in me taking them out. Then I can’t see. The worst thing is my friends and family can get irritated with me because I mention that I will leave early or can’t go, I don’t think they understand that I’m not completely blind or disabled but the second the lenses need to come out then I can’t see(see detail; .people’s facial expressions etc)/Can’t join in/Have to go home, and when I do socialise after my lenses are taken out. I get “not got your lenses in? hahaha” because I have my mobile phone right upto my nose. etc etc.
I agree with this. I’ve been told “just wear your glasses” when I’ve said I cannot go somewhere. The logic being, if Contacts correct your vision, glasses should do the same – just in a different format.