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Category Archives: Diary Entries

I’m considering taking down this site. Why? No help from readers on hosting costs.

I’m considering taking down CorneaNews because despite the good traffic, nobody is donating anything towards its operation in the menu above.

Click here to: Donate $2.00 towards this site’s hosting fees

(The paypal link will show my wife (Heather) and I in the photo – that is correct.)

UPDATE:  My web host just sent me an email that I was at the top of my web resource usage and that I needed to upgrade hosting.

 
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Posted by on June 22, 2016 in Diary Entries

 

Allergies and DALK Transplant – 2014 Season

Well, I’m following in my Dad’s footsteps and my ragweed allergy has increase a lot since last year. Luckily this year it has been mostly nasal, coughing, throat irritation and not as much on the eyes. Still, I’ve played it safe and wore glasses through the worst of it. I’m using pollen.com’s app to monitor as it seems much more accurate than Zyrtec’s app or weather.com.

Offensive ragweed  Flickr - Photo Sharing! - Google Chrome_2014-09-16_12-18-52

ragweed

After first frost, I’m going to get immunotherapy treatments. Hoping it will be tablets or under-the-tongue type, but will need to get tested. I’m waiting because it requires that you have 5-7 days free from antihistamines, and right now, that’s a non-starter. After first frost, ragweed pollen will plummet.

I’ve become more formalized in my contact lens swaps… using my phone appointments reminder to time them and track notes about how they feel at several phases.

Otherwise… eyes are great!

 
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Posted by on September 16, 2014 in Diary Entries

 

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Kindle Paperwhite for Limited Vision Persons

I’ve received several notes asking how things are going. All is well! Eye and vision are fine, but I’m having to use readers more often for small text.

I recently got a Kindle paperwhite…and I’d highly recommend that for Keratoconus patients! You can zoom up on most content and the contrast is amazing. The battery lasts forever and the choices of books is huge.  I wish I’d had this when my Karatoconus was really bad.

kindle-paperwhite-rsoft2012-01-2123-30-14600

You can get yours here.

kindle-paperwhite

 
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Posted by on August 7, 2014 in Diary Entries, Tips

 

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My DALK graft checkup – Corrected to 20/15 and Next Appt in 1-year

I just visited Dr. Holland again for a checkup.  I had a topography taken and the staff found that I was correctable to 20/15… yes… 15.   Dr. Holland said that cases like mine put to rest that vision cannot be as sharp for DALK patients.   I wore my glasses to this appointment, and corrected to 20/20 with those.

My graft is quiet and my eye pressure and corneal thickness are fine.  Dr. Holland reminded me of what to look for – light sensitivity and redness in the left eye only.  I watch it like a hawk.  He said I’m out of the major rejection period, but to always assume rejection when symptoms emerge “until proven otherwise.”

I’m to keep using Restasis 2x per day (indefinitely) … I learn a bit more each visit about how beneficial these drops are to preventing rejection.  Expensive but worth it, and better than steroids for someone like me who responds to them with increased eye pressure.

No more appointments for 1 year unless needed.

orbscan-1-4-13

 
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Posted by on January 5, 2014 in Diary Entries, Dr. Visits, Recovery

 

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A Mild Corneal Abrasion Caused By Trying New Contacts

fluorescein eye exam - Google Search - Google Chrome_2013-12-10_13-30-40Well the question as to whether my grafted cornea has fully regrown its nerves has been answered with a resounding “YES”

I have been hoping to make the transition to “regular” contacts and so have been testing a series provided to me by my fitter.  Two of the types of lenses were “too tight” meaning that they did not move around the eye enough and were difficult to get out.

It seems that during one of the tests, where the lens was sticking in one place through the day, I caused an microscopic abrasion on my cornea.  I had started feeling a persistent burning/lash sensation on my graft and, being a hyper-vigilant paranoid patient, went in to see Dr. Koffler.  He applied florescence and at first didn’t see anything. But after a few moments he found a minor abrasion in the middle of the grafted cornea and concluded this was the source of my discomfort. The graft looked fine, by the way.

muro-solution

I took a break from the lenses, applied Muro 128 and have settled back into using the “custom” 3-month lenses I was originally using, but with an updated prescription.

Everything is fine now as we move into the holidays.

 
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Posted by on December 10, 2013 in Diary Entries

 

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Little Things: Glasses after Corneal Transplant (That Work!)


oakley

A short post today.  With the sutures coming out slowly over time, it’s always been my choice to put off getting a new eyeglasses prescription.

With lenses being so expensive, and insurance limitations, it hardly made sense to pay for a new left lens every few months as my vision (astigmatism) was altered by the process.  I was already tweaking expensive contacts to follow the “suture roulette”, so I chose to hold off on the glasses.

Well, with all sutures out and a month of stabilization, I’ve finally got new lenses for my Oakley glasses.  It’s amazing to have spectacles that correct nearly as well as my contacts – and liberating.  I can now feel more confident on driving holidays where I might find myself at the wheel longer than my lens wear time allows.  And I can easily drive should a mid-night emergency happen.

Scott Clark

With allergies wreaking havoc on both eyes this Fall, I may choose to wear the glasses more often, allowing me to use eye drop antihistamines anytime I need them, avoiding the drowsiness that comes with their oral equivalent.

I cannot remember when I last had glasses that worked so well – but I’d guess it’s been nearly 15 years.

So, yet another little thing that the DALK surgery has brought me, more than two years later.

 

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Two Years!

I just realized that it’s been over two years since my graft was completed.  Wow.  It seems like such a short time ago.  All’s well, and I have an appointment with Dr. Holland this week.

The image below shows me participating in the Montpelier Archaeology Team in Virginia as a metal detector expert.  Despite dusty conditions and wind, I never had a single issue with my eyes.

IMG_1302

 
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Posted by on March 20, 2013 in Diary Entries

 

Pre Holiday Update – New Contacts Prescription

Okay this will be a short one as I’m heading home to be with family for the holiday.

After having the most recent set of sutures out, the shape of my eye shifted (as predicted) so I needed new lenses.  This presents a challenge for fitters, but one thing has made the difference… The “auto-refractor”…a device that helps contacts fitters get “close” quickly using a computerized measurement.  If your eye care provider is not using one, ask about it.

Using that piece of equipment has helped my fitter get closer to my vision needs than she seems to be able to do with manual adjustments.  Then, after the device has spit out its numbers, she refines it to the last degree by hand.  My numbers shift rather radically over time.  I previously went to see my fitter within a few days of the suture removal, and then again today (3 weeks later.)   My vision had shifted even more – so next time I will wait longer before making a fitting appointment.

I did have one nagging quality issue with the lenses – two of them got little notches around the rim for no apparent reason.  It created a mild itch, and when I looked up under the light, I could see it.  Luckily, the manufacturer will stand behind them.  This has me inclined to have an additional backup on hand.  Otherwise I’m thrilled.

A new set of lenses is on order now, to be to me after the first of the year.

Happy Holidays!

 
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Posted by on December 21, 2012 in Diary Entries, Tips

 

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Glitz and Beauty Pageant Colored Contacts – from Convenience Stores!

Someone just sent this to me.   I was going to post a photo, but have decided not to.

“In glitz pageants, you will see the use of hairpieces, heavy make-up, deep spray tans, fake teeth (called flippers), false eyelashes, and colored contacts worn by the majority of the contestants.”

She went on to say that mothers are putting these lenses on kids under 8 years old.  And some kids are even losing their sight.  Many are bought in discount shops or… wait for it…. gas stations.

“So, we’ve seen these kids go through a lot of torture primping: spray tans, shellacked locks, pinned-on wigs, waxed eyebrows, glued-on eyelashes and shoved-in flippers. But tonight stacks the deck: Colored contact lenses. “Maybe I’m a little bit too young to have contacts,” Desiree tearfully notes as her coach, Miss Chambrie, attempts to stick the purely cosmetic lenses into the kid’s eyes with her French-manicured talons.”

Stop the madness.  This is child endangerment.  

 

 
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Posted by on November 12, 2012 in Diary Entries

 

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Quick Update: No News is Good News

Hello to everyone. I’ve been getting email asking how things are going so I thought I’d post a quick update and catch everyone up. The site is seeing quite a bit of traffic

First of all, I am still wearing the soft, custom lens on my grafted eye. I’m still very pleased with it. I went ahead and ordered a couple of pair of them which should keep me going until my next appointment with Dr. Holland. If he removes sutures, my prescription is likely to change some – so I don’t want to have expensive lenses I just throw away (these lenses last 3 months.)  My vision is about the same as it was in July.  Not pin-prick-perfect, but very close.   With my right eye working with the grafted one, I have great vision.

I’m so happy with the night driving. We took a trip to Atlanta last week and I did a lot of night driving then. It was wonderful to be able to just drive on and get the trip done while others snoozed in the car.  We were going to dragon*con, and while we were there I noticed that many of the attendees in costume were wearing those weird colored contact lenses.  I shuddered to think about the damage they could do being in there for 18+ hours a day.

My allergies have been a bit of an issue, but nothing like last year. I’m taking daily allergy meds and my eyes don’t get very itchy anymore.  I take a daily Zyrtec as I’ve mentioned before.

I’m still compulsive about protecting my graft and it’s paid off recently. The other day an extension cord in my garage came down and whacked me on my safety glasses covering the grafted eye! Anytime I’m doing yard, garage or basement work, I wear something.  I think it would have hit me in the eye directly!

I don’t have that much news beyond this.

Keep the comments and questions coming – I’m happy to try to answer them.

image by Tjerk Zweers used under creative commons CC:Attribution 2.0 Generic.

 
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Posted by on September 7, 2012 in Diary Entries, Recovery

 

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